Chef Lauren organises fundraising event in Strand Gardens Exmouth, to raise awareness of rare illness which affects her family

The Williams family at their Huntington's Disease stall earlier in Strand Gardens, Exmouth

The Williams family at their Huntington’s Disease stall earlier in Strand Gardens, Exmouth

YOUNG chef Lauren Williams is holding a fun day in Strand Gardens in Exmouth on Saturday, October 4, to raise funds for research into Huntington’s Disease, a rare inherited condition which has affected her family.

Lauren, aged 19, of Hulham Road, Exmouth, said: “ The reason why I am raising money for Huntington’s disease is because it is a relatively unknown illness which currently has no cure but has devastating degenerative effects on the sufferer and people around them.

“My dad was diagnosed a few years ago, his mother and my grandmother were both victims of Huntington’s disease.

“Unfortunately there is a 50/50 percent chance that my sister and I may also have the Huntington gene. I want to be able to do everything I can to help my dad and potentially my sister, children and myself in the future.

“I am currently trying to raise awareness of this illness in my local area so that people will have an understanding of the behaviours that may be portrayed by the sufferers of this illness.”

The event on Saturday, October 4, in Strand Gardens in the town centre, from 10.30am to 5pm, will include cakes stands, raffles, music, bouncy castle and children’s activities.

Anyone interested in volunteering or having a stall should contact Lauren  by emailing laurenthswilliams@gmail.com. Stalls are £10 a pitch or £15 for traders. All the money made will be going to the Devon branch charity for Huntington’s.

The disease affects around 8,000 people in England. It damages some of the nerve cells in the brain, causing deterioration and gradual loss of function of these areas of the brain. This can affect movement, cognition (perception, awareness, thinking, judgement) and behaviour.

Early symptoms can include personality changes, mood swings and unusual behaviour, although these are often overlooked and attributed to something else.

 

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